In 2010, a friend attending the Art Institute of Dallas chose to film a short documentary on my battle with Cystic Fibrosis for her final project. It went on to show at the Angelika Theater in downtown Dallas, won first place at the Student Film Awards and has served as awareness and education to thousands who are unfamiliar with the disease.
I am incredibly proud to call this man my husband, my Superman and the love of my life! In 2015, CrossFit International featured a short documentary on their social media about Zack’s battle with Cystic Fibrosis and how he regained his failing health through CrossFit. It has reached nearly 1 million people worldwide and has motivated countless CFers to reach out and ask for advice on how to better their health as well. His strength, humility and kindness, partnered with his determination to always be better than he was the day before, is an inspiration not only to myself, but to everyone who meets him.
On May 21, 2015 at the Cystic Fibrosis Great Strides Walk in Tampa, my now-husband, Zack, proposed to me while thanking our walk team of family and friends for their support. Word spread quickly and by the end of the event, the Cystic Fibrosis Foundation had caught wind and announced it over the loudspeaker to the rest of the park! Zack planned and executed everything so perfectly and it was truly magical to have so many stop and share in our joy with us.
For my 30th birthday, the opportunity to cross my number one Bucket List destination of Australia off with one of my best friends, Lyndsey, was dropped in my lap. There was SO much to see that I decided to create a video diary instead of simply taking pictures and ended up sharing it with friends and family first, then uploaded it to YouTube for the general public.
On May 3, 2014, I was honored to appear as the keynote speaker for the Cystic Fibrosis Texas Rose Round-Up concert featuring Reckless Kelly (my personal favorites!) and Hayes Carll for a cure. One of my close friends in attendance was so proud of my speech that he began referring to it as my “State of the Union” address and I liked it, so it stuck I have appeared as the keynote speaker for a number of other Cystic Fibrosis fundraising events as well, including two other concerts that featured Cross Canadian Ragweed and Randy Rogers Band as headliners.
I am frequently asked what a PICC line and its placement entail, so during one hospital admission in early 2015, I turned my phone camera on myself to film the procedure. I have since gone on to have a port placed in my upper right chest because I ran out of eligible veins to continue inserting PICCs into.
During particularly long stints of home IV antibiotics, such as this one that spanned 10 weeks, waiting for weekly dressing changes can become tedious. I was cleared by my hospital to change them myself, so I decided to make a tutorial for others who wanted to do the same and included some tips that made them easier for me personally to perform.